Patients’ Handbook Working Group

Feedback from one of the facilitated discussions at the CSP Spring Networking Forum in May 2019, was the possibility of creating, maintaining and providing to every HHFT cancer patient, a Cancer Patients Handbook containing information for patients, their families and carers.

There is a wealth of information online for patients, families and carers, but everyone agreed that the information was often difficult to find and this resulted in additional stress and worry at an already traumatic time.

Since the initial concept of an A5 paper folder which had already been used but for which funding from a local charity had ceased, the use and benefits of technology have become more apparent, but there is also still a need for written matter for some patients.

The idea of a plastic zip-top A3 wallet as already used in Maternity Services was agreed upon, where patients may retain copies of their own medical treatment records and any correspondence, which they can take along to every appointment. Information about local support groups and charity assistance could also be inserted into the wallets by Clinical staff.

Dates of working group meetings

24th June 2019         Minutes from the meeting are available to read

21st January 2020    Minutes from the meeting are available to read

This working group is still active although progress has been paused due to Covid-19. Updates will follow after each meeting once work has resumed.

If you have been affected by cancer and would like to know more about CSP, or you would like to join us at one of our meetings, please contact us below

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